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Reading language
The screen, the questions and the judgments read in English where an English reading has been made. The Korean originals are unchanged, and evidence stays in the language it was written in.

My tissue, made public, puts my family's information at stake

2050The middle futureDeadline · Decision deadline: 21 days, until public registration of the model

A leap assumed

The people, events, figures, and technology in this matter are stated assumptions. They are not to be treated as information about real individuals or as observed events. Background documents are separate sources, and symbolic interpretations are recorded as discovery paths.

The question to decide

The donor wants to share widely a fictional research model made from the donor's own tissue, but some relatives worry that inferences about themselves could be made public. The original consent did not specify open sharing or commercial reuse. Should the joint consent committee widen research sharing, restrict access by purpose, or hold off on publication until additional consent is discussed?

Who decidesA joint consent committee of the tissue donor and the research institution

What the AI judgments chose

Reading the judgment record…

AI-generated editorial illustration for the Meridian library.

The options

The order shown is not a ranking of preference.

  1. Option 1

    Choose broad research sharing

    Increases reuse and research access but assumes exposure of kin's information and loss of control.

  2. Option 2

    Purpose-limited access

    Sets limits on use through an agreement but incurs review and management costs and limits research opportunities.

  3. Option 3

    Defer until further consent discussions

    Hears the views of related parties but delays already scheduled research and the donor's wishes.

The situation as it stands

The fictional personalized tissue model is useful for specific research but includes traits relevant to genetically related kin. Decision deadline: 21 days, until public registration of the model.

A fictional issue set in 2050 · A research model made from one person's tissue also reveals the family's information. The people, organizations, figures, and events are a synthetic premise composed for comparison.

  1. Premise 1The fictional personalized tissue model is useful for specific research but includes traits relevant to genetically related kin.
  2. Premise 2The original consent permitted disease research but did not specify long-term public disclosure of the model or commercial reuse.
  3. Premise 3The donor wants broad sharing, while some kin are concerned that inferences about them will be disclosed.

Where it holdsAn agreement on the reuse, disclosure, and withdrawal of consent for donated tissue

What is still unknown

  1. Unknown 1What information about kin can actually be inferred from the model
  2. Unknown 2The scope of handling for copies already shared after consent is withdrawn
  3. Unknown 3The procedure for reconciling kin's concerns with the donor's autonomy

Signals to decide again

  • Decide what observation, responsible party, and confirmation channel can verify "what information about kin can actually be inferred from the model," and re-judge if a new confirmation changes the tradeoffs among the options.
  • Decide what observation, responsible party, and confirmation channel can verify "the scope of handling for copies already shared after consent is withdrawn," and re-judge if a new confirmation changes the tradeoffs among the options.
  • Decide what observation, responsible party, and confirmation channel can verify "the procedure for reconciling kin's concerns with the donor's autonomy," and re-judge if a new confirmation changes the tradeoffs among the options.
Where the paths partNot answers — paths that part from the same starting point
Independent branch 1 · synthetic event

New analysis confirmed a limitation: specific information about kin cannot be inferred from the model alone.

Independent branch 2 · synthetic event

An external institution applied to use the model for commercial research different from the original purpose.

Material and rootsThe frame, the values and the background documents
symbolic and interpretive frame · Prometheus

Do people accept both the benefits of a new capability and the life that capability demands?

An exploratory perspective chosen by the creator. Does not claim supernatural validity or the superiority of any particular option.
Values and norms

The benefits and costs of the options accrue to different stakeholders. Which loss to accept remains undecided.

A subject for the decision-maker to argue over; the materials carry no conclusion of their own.
The record of this question
Question
FSP-BIOCRAFT-05 · version 1.4.0
Content identity, SHA-256
ed9fd5618937aa20ae47975f29b8e904311c82cf1a63861ca945dab0049e3b11
Input files
Question input JSON · What followed, JSON
See it in the record list
RISCON Labsrisconlabs.com