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SeriesLife and mind

Genres
Life and mind · Designing life, and evolution

My tissue, made public, puts my family's information at stake

The donor wants to share widely a fictional research model made from the donor's own tissue, but some relatives worry that inferences about themselves could be made public. The original consent did not specify open sharing or commercial reuse. Should the joint consent committee widen research sharing, restrict access by purpose, or hold off on publication until additional consent is discussed?

Decision deadline: 21 days, until public registration of the model · All 13 judgments agree

ReadThe series

Consciousness, desire and changing values

Designing life, and evolution

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